I don't want to forget to include this, so I'll say it first. Heidi, I'm sorry to hear about your husband's illness. My wife used to work for the Parkinson's Disease Foundation in New York City. Unfortunately, she resigned because the Foundation was more interested in putting money into research rather than helping the patients with personal programs and support groups. Because of this, she is now in school for Nursing.
Pat, time is a horrible enemy. I tried my best to squeeze time whenever I could and lost literally thousands of hours of much needed sleep. Working till 2 or 3am, then to wake up at 7am was too much for me after 2 straight years. I thought after living with insomnia for so many years before, that forced insomnia would be a piece of cake.
I'm forcing myself to stay up again, it's extremely hard, a freezing attic does'nt help.
We are hardly getting by on bills, always have to tap into the savings to pay the mortgage, but I also have a daughter, and I've already lived my childhood in near poverty level, so there's no way in hell I'll let her live that way. She's why I continue, I can only hope it'll have been worth it. If not, I'm kicking her out of the house at 18, hahahaha.
Good luck Pat.